Hi family and friends,
Some of you may know that our daughter, Hadassah, has Tuberous Sclerosis Complex. We recently traveled 9 hours to Lusaka (capital city) for an evaluation, because Hadassah’s seizures have been increasing.
She was given another medication, totaling 3 anti-seizure medications twice a day. At this appointment we were given a lot of information; some of which I am still processing.
We learned that non-cancer tumors can grow at any time and she will need to be monitored by MRI scans of the brain and abdomen, EEG, EKG every two years, eye specialist and dermatologist every 6 months. (Subject to change if any medical alert comes up. )
Her Doctor has run the tests needed to see if Hadassah is a candidate for the ketogenic diet. At her next visit in November, we will go over the results. If all goes well the whole family will start the ketogenic diet. In doing this diet Hadassah will be traveling every couple of months to Lusaka for evaluations.
At the end of this month we will be moving to the village. Currently we have no electricity out there. With Hadassah’s new up coming dietary restrictions for her seizure’s, we are looking into a solar inverter to power a refrigerator.
If you feel led to help with our added expenses these are our needs:
- Solar Inverter
- Medication
- Travel Expenses to Lusaka
- Doctor appointments
- Bloodwork
- MRI’s, EEG, EKG
- Diet (restrictive/costly)
Please click here (Holt, Faith & Muunga, Fred -178) to give.
PRAYER for:
- Hadassah complete healing of seizures
- My heart
- God’s provision and grace
- Adjusting to our new home and community
- Against any witchcraft, alcohol, drugs or theft
- We would be a light in the darkness
- The rains in Zambia
Thank you, and may God bless you and your families.
Love ~
Fred, Faith, Hadassah, Asher and Anne